Wednesday, January 23, 2013

Vt. Mom Begs FDA: Save My Other Son | Essentials

Vt. Mom Begs FDA: Save My Other Son

Rare Diseases Take Spotlight in Annual Event
Rare Diseases Take Spotlight in Annual Event by The U.S. Food and Drug Administration
License (according to Flickr): United States Government Work
Excerpt:

Both her boys have Duchenne muscular dystrophy, but only her 10-year-old Max has access to a wonder drug that appears to be reversing the symptoms of this deadly disease. His 13-year-old brother Austin is languishing in a wheelchair while Max has been able to take the drug eteplirsen through a highly successful clinical trial. After 60 weeks on an IV infusion, Max was able to participate in a three-mile Halloween walk. "It's the first time ever -- he's never been able to walk that far. He's always gone with a wheelchair, even as a toddler," said McNary, 32. "He actually doesn't look like a Duchenne kid at all. And his balance is great." "People all over the world are calling it a miracle," she said of the drug.

People:

Austin

Overall Sentiment: -0.122599

Relevance: 0.843169

SentimentQuote
0"My brother says he's doing it for me, that he's trying really hard," Austin told ...
-0.028516"My brother says he's doing it for me, that he's trying really hard," Austin told ABCNews.com in August. "That's why he wanted to do it."
Sentiment Stats:
  • Number of Quotes: 2
  • Aggregate Sentiment: -0.028516
  • Mean: -0.014258
  • Standard Deviation: 1.7320508075689

Max

Overall Sentiment: 0.146993

Relevance: 0.60938

McNary

Overall Sentiment: 0.114472

Relevance: 0.567088

SentimentQuote
0"It's the first time ever -- he's never been able to walk that far. He's always gone with a wheelchair, even as a toddler," said McNary, ...
0.120372"It's the first time ever -- he's never been able to walk that far. He's always gone with a wheelchair, even as a toddler," said McNary, 32. "He actually doesn't look like a Duchenne kid at all. And his balance is great."
0"This has been a bitter-sweet journey for us," McNary wrote ...
0.0488875"This has been a bitter-sweet journey for us," McNary wrote in a letter to the FDA this week. "As we watch Max get better, we also watch his older brother, Austin, 13, get worse. He suffers, silently, as his disease progresses."
Sentiment Stats:
  • Number of Quotes: 4
  • Aggregate Sentiment: 0.1692595
  • Mean: 0.042314875
  • Standard Deviation: 0

Cure Duchenne

Overall Sentiment: 0.0964591

Relevance: 0.350396

Craig

Overall Sentiment: 0.271376

Relevance: 0.277758

Leclair

Overall Sentiment: 0

Relevance: 0.245133

Key:

  • Aggregate Sentiment is meant to be an indicator of an individual's overall sentiment.
  • The Mean is meant to be an indicator of an individual's average comment sentiment.
  • The Standard Deviation, when there are enough quotes, will indicate an individual's consistency of sentiment (i.e. a Standard Deviation of 0 would mean they were very consistent in their sentiment and 1 would mean they were very inconsistent).

Note that quote stats are likely to be meaningless beyond the aggregate score due to the tiny sample size. However, they are always provided just in case you find something useful there.

Additional Info:

HealthCondition: muscular dystrophy

Overall Sentiment: 0.0300408

Relevance: 0.593536

Organization: Food and Drug Administration

Overall Sentiment: 0.391463

Relevance: 0.487323

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