Thursday, February 21, 2013

'Bubble Boy' Bill Passes Congress | Reduction

'Bubble Boy' Bill Passes Congress

World Aids Day, December 1
World Aids Day, December 1 by Sully Pixel
License (according to Flickr): Attribution-ShareAlike License
Excerpt:

If there's one thing Jenny Gardner is afraid of, it's hospitals. She has a primary immunodeficiency disease, also known as the "bubble boy" disease, which renders her body unable to combat the everyday viruses and germs that could lurk in hospital corridors. And, as fate would have it, Gardner has to go to a hospital every three or four weeks to get the treatment she needs to stay alive. "That's the last place in the whole world we need to be. That's where the germs are. That's where the sick people are," Gardner said. "There are some winters where I have pneumonia two or three times a year." Click here to find out the 10 worst things for the immune system.

Keywords:

primary immunodeficiency primary immunodeficiency diseases Immune Deficiency Foundation Gardner Medicare IVIG Access IVIG Access Act home treatment David Vetter primary immunodeficiency disease people home treatment Blaese three-year pilot program Dr. Michael Blaese Image Bank/Getty Images late David Vetter Rep. Kevin Brady Rep. Doris Matsui Carol Ann Demaret infusions Jenny Gardner intravenous infusions home infusions sick people hospital corridors bubble boy hospitals intravenous treatments everyday viruses worst things View Full Size blood donors infusion treatments medical director nurse administer Friday night United States rural areas infusion drugs President Obama late 30s Lamar Alexander health care financial issue congressional aides young families John Kerry rare disease associated costs

People:

Jenny Gardner

Overall Sentiment: -0.0503841

Relevance: 0.929066

SentimentQuote
-0.364054"That's the last place in the whole world we need to be. That's where the germs are. That's where the sick people are," Gardner said. ...
-0.318857"That's the last place in the whole world we need to be. That's where the germs are. That's where the sick people are," Gardner said. "There are some winters where I have pneumonia two or three times a year."
0.10362Gardner said has been calling congressional aides for years, hoping to convince them that people with primary immunodeficiency diseases need home treatment, but they often tell her the same thing: "You don't look sick."
-0.254521"We hate to hear that," Gardner said. ...
-0.21949"We hate to hear that," Gardner said. "I've been sick my whole life, and I'm 62 years old. … I missed a lot of school. My parents were actually investigated I missed so much school one year."
-0.0180257"I grieve for them, because not only do they have to deal with a very rare disease for their children, but then on the other hand, they have to fight the financial issue of what is covered and not covered," she said.
0.046458"I grieve for them, because not only do they have to deal with a very rare disease for their children, but then on the other hand, they have to fight the financial issue of what is covered and not covered," she said. "I don't think a young family with children should have to fight on both sides of the coin. Their fight should be for the child's well-being."
Sentiment Stats:
  • Number of Quotes: 7
  • Aggregate Sentiment: -1.0248697
  • Mean: -0.14640995714286
  • Standard Deviation: 1.7320508075689

Dr. Michael Blaese

Overall Sentiment: 0.0223843

Relevance: 0.552392

SentimentQuote
0.282757"It's very important for these individuals," said Dr. Michael Blaese, ...
0.0522657"It's very important for these individuals," said Dr. Michael Blaese, medical director of the Immune Deficiency Foundation. "If they don't get it, they get infected, and they die of pneumonia, meningitis, septicemia."
0"It used to drive me nuts," Blaese said. ...
0.483427"It used to drive me nuts," Blaese said. "There's nothing more disconcerting for a physician than to have a treatment that's effective for a patient, and then we can't get it to them."
-0.169397Blaese said the drug's occasional reactions, including headaches, back pain, nausea and a rare "shock-like" ...
Sentiment Stats:
  • Number of Quotes: 5
  • Aggregate Sentiment: 0.6490527
  • Mean: 0.12981054
  • Standard Deviation: 1.7320508075689

Rep. Kevin Brady

Overall Sentiment: 0

Relevance: 0.426625

SentimentQuote
0.0794626"I've been inspired by the courage of David Vetter and his mother, Carol Ann Demaret, who, as a leader in the Immune Deficiency Foundation, helped me understand how dangerous it is to send PIDD patients to hospitals and doctors' offices each month," Brady said ...
0.122589"I've been inspired by the courage of David Vetter and his mother, Carol Ann Demaret, who, as a leader in the Immune Deficiency Foundation, helped me understand how dangerous it is to send PIDD patients to hospitals and doctors' offices each month," Brady said in a statement. "For those most at risk, it's important that we continue to make health care more affordable and accessible."
Sentiment Stats:
  • Number of Quotes: 2
  • Aggregate Sentiment: 0.2020516
  • Mean: 0.1010258
  • Standard Deviation: 0
Disambiguation: Politician | U.S.CongresspersonReferences:

David Vetter

Overall Sentiment: 0.308736

Relevance: 0.406075

Obama

Overall Sentiment: 0

Relevance: 0.330024

Disambiguation: Politician | President | Appointer | AwardWinner | Celebrity | PoliticalAppointer | U.S.Congressperson | USPresident | TVActorReferences:

Lamar Alexander

Overall Sentiment: 0.108379

Relevance: 0.268922

Disambiguation: Politician | Senator | U.S.CongresspersonReferences:

Carol Ann Demaret

Overall Sentiment: 0.156344

Relevance: 0.258966

John Kerry

Overall Sentiment: 0.057062

Relevance: 0.25795

Rep. Doris Matsui, D-Calif.

Overall Sentiment: 0

Relevance: 0.253036

Key:

  • Aggregate Sentiment is meant to be an indicator of an individual's overall sentiment.
  • The Mean is meant to be an indicator of an individual's average comment sentiment.
  • The Standard Deviation, when there are enough quotes, will indicate an individual's consistency of sentiment (i.e. a Standard Deviation of 0 would mean they were very consistent in their sentiment and 1 would mean they were very inconsistent).

Note that quote stats are likely to be meaningless beyond the aggregate score due to the tiny sample size. However, they are always provided just in case you find something useful there.

Additional Info:

Organization: Immune Deficiency Foundation

Overall Sentiment: -0.0339408

Relevance: 0.597804

Organization: Congress

Overall Sentiment: 0.210901

Relevance: 0.403928

Disambiguation: Dedicator | GovernmentalBody | Legislature | NaturalOrCulturalPreservationAgencyReferences:

Organization: Medicare

Overall Sentiment: 0.123126

Relevance: 0.402154

Organization: House

Overall Sentiment: 0

Relevance: 0.33809

Organization: Senate

Overall Sentiment: 0.0370664

Relevance: 0.3062

Country: United States

Overall Sentiment: 0.151503

Relevance: 0.317781

Disambiguation: Location | Region | AdministrativeDivision | GovernmentalJurisdiction | FilmEditorReferences:

HealthCondition: pneumonia

Overall Sentiment: -0.355847

Relevance: 0.423389

Disambiguation: DiseaseOrMedicalCondition | CauseOfDeath | DiseaseCause | RiskFactor | Symptom | DiseaseReferences:
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